Every night I cry a little, whether I show it on the outside or not is an entirely different story. My little sister is turning 6 years old soon. And in the past 6 years I have seen her go through more pain than anyone I have ever known. I remember the moment I found out that she had a terrible skin condition. I remember the moments she screamed over and over again. I remember the moments she shook in my arms. I remember the moments where I couldn’t tell the difference between her and a burn patient. And I hate to admit it but these moments still continue and will for the rest of her life.
My sister has a rare skin condition called Epidermolysis Bullosa. She blisters from friction, scratching or the slightest of rubbing on her frail skin. Basically, she lacks the glue for her skin to stay on. Needles are used to pop her blisters and gauze to absorb the liquid that seeps from her wounds. At times, she is bandaged when her blisters and sores need more protection. Her condition is not contagious but it is genetic. Epidermolysis Bullosa occurs 1 in 50,000 births.
She’s just like any other child her age but she has some obstacles here and there. Most of the time, my sister is just her own worst enemy because she wants to do absolutely everything. There are some times where she can’t eat certain foods because they could cut her mouth and cause blisters. There are some times where she has to stay inside because it’s too hot or sunny and it could also cause blisters. She knows what she can or cannot do but she likes to test her limits.
I love this little girl more than anything. Before she was born, I didn’t know what I wanted to do with my life. After she was born, I made a promise to myself and to her that I would try my best to get out the awareness of this skin condition to as many people as I possibly could. And I am determined to do exactly that.
Please reblog this to spread awareness. It would mean the world to me, my little sister and others I have met and yet to met with this skin condition.
Any questions for me? http://stillunwritten.tumblr.com/ask
See this book? It is a book about birthday. Each birthday has a page describing the person born on that, almost to a T.
It has the positives and negative traits of the birth date, advice/a description of the love life, career careers, lucky numbers, lucky days of the week, ect.
I’m bored, so let’s do something fun.
Reblog this with your birth date, and I will tell you what this book says about you.
EDIT: Please have your submit turned on.
november 23rd, 1993
March 23rd, 1998
October 26th, 1986
February 14th, 2000
March 20, 1994
February 21, 1995
May 21, 1998
May 19, 1997
April 23, 1995
September 30, 1998
November 7, 1996
October 27, 1998
she lives on the opposite side of the country but she goes to san diego every year during the summer. we’ve been going out since tumblr prom and i haven’t been able to even hold her hand since. please tumblr i love this girl and i really want to see her in front of me instead of on skype
REBLOG THIS BECAUSE SMALIE IS PERFECT.
REBLOG REBLOG REBLOG OMG DHSFGSHDSAJ
People, just reblog. They’re PERFECT.
Question Tuesday - Oct. 16, 2012 [ x ]
Sweet mother of Jesus let this song never end.
Cheesus fuck that was amazing
WHAT A PLEASANT SURPRISE OH MY GOD
This is the best thing ever. Just hit play. You need to.
I will never escape this song in my lifetime. Oh my God…that was amazing.
At 3 seconds I almost pressed stop.
Then I heard the lyrics. Oh god the lyrics.
omg this is perfect
THIS IS SO MUCH BETTER THAN I EXPECTED
I CANNOT BE THE ONLY ONE WHO IS SCREAMING SO FUCKING LOUD RIGHT NOW.
I was like “ok this is kinda cool but why are people so excited-OHMYGODDDDDDDDDDDDDDDDDDDD
*Insert hundred of dancing gifs here*
I CAN’T I CAN’T I JUST CAAAAAAAAAN’T WHAT HAVE YOU DONE TO MEEEEEEE!!!
Kurt and Blaine are very public about their sex lives.
Sometimes I get bored.
Best Thing invented.
ALL THE AWARDS
YES, YES, YES